Monday, November 29, 2010

lymefriends

I just wanted to say that I am praying for all of you who are suffering.

'Lord Jesus, although I wonder at times, "why me?" or "why is this happening?", I know I may not get those answers on this side of heaven. But I do know that you are God, a loving and compassionate God, who loves me and is always there for me. I know through this horrific experience I have met a community of friends that share my journey. They encourage me, pray for me, and check up on me weekly. I value there friendship and am blessed to know them.

I lift up all of them right now, the ones I know and the ones I don't. This disease takes so much from us, that I pray God that you give us a continued strength to fight for our health back. I pray for relief from the multitude of symptoms that can come and go. I pray that they have people in their life that helps them feel less alone in their pain.
I pray that their family and friends can try to understand and support them in the ways that they need. I pray Lord, that through this illness, they can grow closer to you and one day be free of this disease. Amen.'

Sunday, November 28, 2010

Happy Holidays!




I just wanted to wish everyone a wonderful holiday season! If you have lyme, I hope your symptoms were minimal over thanksgiving, so that you could enjoy some relaxing time with family/friends and some good food.

We spent a couple of days in Austin Texas (just the hubby and me) for a mini vacation, and then headed over to Wylie Texas for a family feast.

Luckily my lyme symptoms were under control, yet we had numerous other illnesses passing through our family. So, it was challenging at times.

Now the countdown till Christmas is here and it's time to get out the decorations! This Christmas will be so much better than last and I look forward to it!

Thursday, November 18, 2010

Babies, Babies, and more babies

Man, lately, I've really had the baby itch. A couple of weeks ago, I was sitting in church, and we were surrounded by infants. They were so cute and little and they all were boys. I silently cried the entire service.

Let me back up a bit. In 2008 I had a miscarriage. At the time, I didn't know I had lyme. Now that I know that Lyme can cause miscarriages, still births and birth defects, I'm pretty sure Lyme probably had something to do with my miscarriage. (I can't prove it, so it will always be a mystery) We were not trying to get pregnant, so it was a joyful surprise. And it hit me pretty hard when we lost the baby. I was almost 3 months pregnant. I had always wondered what gender the baby was, (mostly because we already had two girls and I really wanted a boy) But we got pregnant later that year, and had a precious baby girl.

After our baby girl was born, that is when my health started deteriorating from my disease. Slowly I got sicker and sicker and it turned into the worst year of my life. I was so sick that I missed most of our baby girl's first year.

It was in that year that I talked to many families who had passed this disease on to their children. Some kids were really sick, some were mildly sick. But I was seeing the same pattern....the mom was unknowingly infected, and after she gave birth, the children tested positive for it (either as a infant, toddler or school-aged child). I can give you probably 20 of my facebook friends who have this scenario...and many more on other chat or support networks. (roughly about 80 in total)

Not only was my body being tortured by Lyme, but now I had to come to terms that my children might be sick too? It made me sick to my stomach to think about. I pray for a way to get them tested some time in the future. (more on that later)

And that leads me back to my first topic. Babies. If I was not sick, I would either try to conceive again, or try to adopt. (and I would hope for a boy, I want some blue in this house :) )

But the reality is that I just can't put my baby through that risk. I personally do not want to risk having another miscarriage, or worse, a still birth. And I would not risk giving my child a disease just because I long for more children.
(*note* I realize some Lyme mothers have successfully had healthy babies while on antibiotics throughout their pregnancy, so I am not judging anyone who wants to make that choice.) You can read an amazing blog about a healthy delivery by visiting The Lyme Pregnancy Journal. Her baby's umbilical cord tested negative for lyme. And he looks like a healthy handsome baby boy! Believe me, if I didn't have any children, I would seriously consider taking that risk.
But I've talked to many mom's who DID use antibiotics throughout their pregnancy and their children still tested positive for Lyme and co-infections. I just can't emotionally take that risk, especially since I don't know the status of my own children.

So, why don't I adopt? Well, I would in a heartbeat. But, I believe children deserve to have a balanced life with two healthy parents. If anything happened to me, disability or death, that would be too much for Jeremy to handle by himself. I would also feel guilty if I were to sick in bed to take care of our baby or children. Plus, I would have to disclose my illness to the adoption agency, and I seriously doubt they would place a child with me. Another reason is money. We need every penny to go towards all my necessary medical appointments and medications.

So, I will just have to be ok with enjoying other peoples babies (like my new nephew Carson - what a cutie with fat little cheeks!) or my best friend's soon-to-be baby!

Don't get me wrong, I am blessed to have 3 children, and I appreciate what I have. But I do allow myself to mourn what I have lost due to this disease. And I feel I have a right to. It will help me heal and move forward. Until then, though, I will shed a tear here and there.

Support Group

Our Support group this week went great! We had two new couples and one spouse of a member who hadn't come before. Our topic was herxing, detox and supplements.

Check out the new blog: www.wichitalymesupport.blogspot.com

We were missing a few of the *regulars* due to sickness and schedule conflicts. I hope they feel better soon!


Sunday, November 14, 2010

Flagyl

For the record, I'm feeling better. I haven't checked my blood sugar yet, just cause we have been battling illness in the family last week. Then we just got busy, but I will check it soon. Pretty sure we are all healthy now.

Last week I did a round of Flagyl. Many of us lymies joke about Flagyl calling it the 'evil' drug'. We call it that because it can have it's own side effects, mainly extreme mood changes. But the main reason we call it that is because it's a very hard drug. It is one of the few drugs that help brake up the 'cyst' form of lyme.

When people are on antibiotics, they mainly feel better because the bacteria goes into hiding when it determines it's surroundings is unsafe. Then when the drugs are stopped, it comes out of hiding, and people experience a relapse. When the bacteria is hiding it either 'drills' deeper into tissue or organs that antibiotics can't reach, or it curls up in a ball (coating itself with a protective exterior) called a cyst. It can also form a colony, with many lyme bacteria hide together.

If you want to watch it in action, someone posted it on youtube:

Gross, I know. But Flagyl is supposed to help break those cysts and colonies open so that we can kill the lyme. I am supposed to do a round of Flagyl once a month, and boy do I know when I take it!

Here is to killing more lyme and getting more better!!!! (lol...more better, I know that's not correct grammar, but who cares!)

Friday, November 5, 2010

prayer request

I always hesitate announcing that I'm 'symptom free' because something always happens soon after. But this is a little different. For the last three days, on and off, I've been really weak. I get this feeling like I'm going to pass out, and I have NO strength at all. Even walking from one room to the next makes me exhausted, and my heart beat either really speeds up or really slows down.

I hate to say this, but it 'kind of' reminds me of when I had gestational diabetes with Matea. So, I think tomorrow, I'm going to test my blood sugar levels, hoping I still have all the supplies.

I'm also hoping that this is just lyme related and NOT diabetes. But I know my body, and this isn't just the 'go get some exercise' kind of tired, it's something more.

I just know that having Lyme and Diabetes will be...well...it will suck.
So please pray that I get some answers soon and for it to heal.
thank you


Tuesday, November 2, 2010

update on symptoms

Whoo hoo! Celebrating being symptom free for two weeks now. This year has been soooooo much better, with most of my symptoms reversing.

Brain zaps - gone since summer
Nerve pain - gone expect for occasional relapse
Internal vibrations - gone since spring
seizures/convulsions - gone since last year
Electrical sensations - gone since summer
twitches/tremors - gone since summer
Anxiety/panic - gone since spring
Air hunger/not being able to breathe (gone, but does resurface)
Brain fog - sooo much better

I still have memory problems and fatigue, but I can live with that. :)

I'm no longer seeing my psychiatrist (since early summer) and haven't been on any mood drugs for a long, long time. I knew and trusted once my lyme symptoms were under control, the other stuff would take care of itself.

If A is causing B, then help stop A and the B will go away. simple but true.