So I read that the medical community is getting discouraged from diagnosing Lyme disease because it could affect tourism for that particular state. Isn't that awful and a tragedy for those that are suffering and don't know why.
I've also read that some people that have a diagnosis for Lyme get harassed by the CDC to admit that they did NOT get Lyme disease from that state. Which is false. Such politics...I hate it.
Now that I have been properly diagnosed, I can think back to my past health issues and understand some things. My whole adventure with vertigo now makes sense. Vertigo is very common with this disease. Normal healthy people don't get vertigo at the age I did. First I got it at age 28, then after the birth of Monea. I went to six different specialist, none could tell me anything, and none tested me for Lyme.
I believe our miscarriage was also caused by lyme. I've read many articles where they have found this disease in miscarriages and still-births. My prayer is that our children will be spared from this horrific disease. I also pray for a cure.
Headache, migraine Pressure in the head Tingling of nose, cheek, face Flushing Twitching of facial or other muscles (motor tics) Jaw pain or stiffness (TMJ-like problems) Difficulty chewing, swallowing, speaking Facial paralysis (Bell's palsy) Sore throat, swollen glands, phlegm Runny nose Sinusitis Hoarseness or vocal cord problems Increase in allergy symptoms Change in smell, taste; smell or taste hallucinations Unexplained hair loss
Double or blurry vision Oversensitivity to light Floaters, spots, flashing lights Phantom images in corner of eyes Decreased perception of light or color Vision changes incl. blindness, retinal damage, optic atrophy Eye pain Wandering or lazy eye Drooping eyelid Swelling around eyes Red eyes Conjunctivitis or "pink eye"
Decreased hearing Plugged ears Pain in ears Ringing, buzzing, tinnitus Oversensitivity to sounds
Digestive & excretory systems
Diarrhea or constipation Upset stomach (nausea, vomiting, pain) GERD (gastroesophageal reflux disease/acid reflux) Irritable bladder (trouble starting or stopping) Unexplained weight gain or loss Loss of appetite
Bone pain, joint pain, joint swelling, or stiffness Shifting joint pains Carpal tunnel syndrome, tennis elbow Neck is stiff, painful, creaks or cracks Muscle pain or cramps (fibromyalgia) Burning sensation in feet Shin splints Plantar fasciitis Drooping shoulders Poor muscle coordination Muscle weakness Loss of muscle tone
Shortness of breath, can't get full/satisfying breath Cough Bronchitis Chest pain or rib soreness Night sweats, unexplained chills Heart palpitations, extra beats or pulse skips (arrhythmia) Heart blockage, murmur, valve prolapsed, heart attack Stroke Swelling or enlargement of heart Diminished exercise tolerance
Burning or stabbing sensations in the body Peripheral neuropathy or partial paralysis Weakness or paralysis of limbs Tremors or unexplained shaking Loss of reflexes Seizures White matter lesions Numbness, tingling, pinpricks Poor balance, dizziness, difficulty walking Light-headedness, wooziness, brain fog, fainting Meningitis (inflammation of the protective membrane around the brain) Encephalopathy (cognitive impairment from brain involvement) Encephalomyelitis (inflammation of the brain and spinal cord)
Mood swings, irritability Agitation Anxiety, panic attacks Depression Overemotional reactions, crying easily Disorientation: getting lost or going to the wrong place Aggressive behaviour or impulse violence Obsessive-compulsive behaviour Bipolar disorder, manic episodes Schizophrenic-like states Personality changes Depersonalization Increased suspiciousness, paranoia Hallucinations Suicidal thoughts Feeling as if you are losing your mind Eating disorders, anorexia Difficulty falling or staying asleep, too much sleep, or insomnia
Forgetfulness, memory loss (short or long term) Confusion, difficulty in thinking Difficulty with concentration, reading, or spelling Word retrieval problems (can't remember words, stop at mid-sentence) Dyslexia-type reversals, difficulty with writing Problems with numbers Difficulty with speech (slowed, slurred or stammering) Forgetting how to perform simple task Attention deficit problems, distractibility Difficulty with organization and planning Difficulty with multitasking Slowed speed of processing Poor school or work performance
Reproduction & sexuality
Loss of sex drive Sexual dysfunction Unexplained menstrual pain, irregularity Unexplained breast pain, discharge Extreme PMS symptoms Endometriosis Miscarriage, stillbirth, premature birth, neonatal death, congenital Lyme disease (passes from mother to foetus) Testicular or pelvic pain
Extreme fatigue, tiredness, exhaustion, poor stamina (Chronic Fatigue Syndrome) Unexplained fevers (high or low grade) Low body temperature Narcolepsy, sleep apnea Swollen glands, swollen/painful lymph nodes Continual infections (sinus, kidney, bladder, eye, ear, etc.) Chemical sensitivities Symptoms seem to change, come and go; pain migrates to different body parts Early on, experienced a "flu-like" illness, possibly not feeling well since Exaggerated symptoms or worse hangover from alcohol Increased motion sickness Decreased interest in play (children)
I just want to thank everyone that has donated money or time or services towards me and my family. I can't begin to express how much we have been blessed by family and friends. I won't name any names, but you know who you are! Even those that are praying for us...I know we need it!
I'm not sure why God has me carry this cross, but I hope I can help others in all of this. I pray that he protects my children and husband and help them through this also.
Tomorrow (Thursday) is when I start my new medicine, Flagyl. This is the end of the first cycle, and the doc always adds flagyl at the end of the cycle. I take it Thursday and Friday, then a week off all meds. Then the cycle starts over. So far I've tolerated the meds well, but this new one scares me a bit. It is a cyst breaker...meaning it goes after the spirochetes in the cyst form. The other meds Im on target the cell wall spirochetes. The doctor says that when you are symptom free, that means your not killing any spirochetes, and you need to add a cyst buster to the protocol. So, it should bring back some of my symptoms. The scary part is that I don't know which ones...so we wait and see. The good news is that if you have symptoms, that means your killing the little buggers. And I want to kill as many as possible with the least amount of pain.
Wishing everyone a Happy New Year! Although this last year was literally from hell, there was a lot of blessings also...like the birth of Matea, and all her first milestones. She sits up on her own now, yet demands to be held all the time. :)
Mazzie is 4 now, and such a little lady. She demands to wear clothes of "the holiday". She started by wearing Halloween clothes every day, then it was a Christmas Dress every day (she skipped Thanksgiving) and now its New Year clothes. Soon it will be Valentines day clothes.
Monae is our strong, stubborn, almost three year old. She is also my helper...always looking for ways to assist me in cooking or whatever.
I've been seeing better days also. Im on my second week of changed meds, with no new symptoms. The third week is when I add the new one, Flagyl. Its supposed to be a cyst breaker, so we will see.
I'm a Lyme Momma trying my hardest to get healthy again...while also helping the local community become educated about tick-borne illnesses. This blog is a little about my journey and also about Lyme Education, Advocacy, and Awareness.
Information is not intended to treat, diagnose, cure or prevent any disease. All information provided is for informational purposes only. Always seek the advice of your physician before making any treatment decisions. I am not responsible for any third-party information referred to from the site. I not take responsibility for the accuracy of any information and suggests that you do your own research and consult directly with your personal doctor.